2012 Caroline Thompson Memorial Lecture
Guest Lecturer: Joy Hammel, PhD, OTR/L, FAOTA
Professor, University of Illinois at Chicago
Departments of Occupational Therapy and Disability & Human Development
PhD programs in Disability Studies and in Rehabilitation Sciences
Title of the Lecture: "Insider Perspectives on Home, Community & Work Participation Disparities Experienced by People with Disabilities: Are we responding to priorities of the disability community and what would OT look like if we did?"
Please view Invitation
Date: Thursday, October 11, 2012
Time: 5:00- 8:00 pm
Schedule of Events
5:00–5:45 p.m. Networking, Appetizers and MSOT Student Research Presentations by Ashley Arbuckle, Laura Hewitt, Megan Janssen, Libby Reindl, Jocelyn Wack and Lindsay Wuest
5:45–6:00 p.m. Welcome
6:00–6:30 p.m. Caroline Thompson PhD Fellows’ Research Presentations-Julie Hunley and Wade Gunn
6:30–7:30 p.m. Lecture
7:30–8:00 p.m. Discussion
8:00–8:10 p.m. Preceptor of the Year Award-Tamra Trenary
Location: Pyle Center, 702 Langdon Street, Madison, WI 53706
About Joy Hammel
Joy Hammel’s scholarship has focused on community-based participatory research related to community living and participation choice, control and societal opportunity with people with disabilities and disability & aging communities. This includes: 1) research to identify key environmental barriers and supports to least restrictive community living and full societal participation, 2) research to create and validate assessment tools and item banks to evaluate participation disparities and opportunities at individual and environmental levels, and 3) participatory environmental intervention research to effect systems change and social justice, action plan environmental and policy issues, and build community capacity related to community living and participation. Joy has practiced as an OTR for over 25 years, and holds degrees in occupational therapy (BS from UW-Madison), education (MS from San Francisco State University), and educational psychology (PhD from University of California at Berkeley). At the same time, she identifies as a person with a disability herself, and is deeply committed to social justice issues and systems change actions to address participation disparities with the disability community.
Overview of the Presentation
Full participation in society is not only a desired outcome of rehabilitation, but equally important, a civil right for people with disabilities as mandated within the Americans with Disabilities Act. National surveys continue to show that people with disabilities experience significant disparities, compared to people without disabilities, in key areas of life participation in community living and integration, community participation, social relationships and capital, life role satisfaction, education and work. At the same time, research shows that many people with disabilities, such as stroke, live lives with long term disabilities and accumulated chronic conditions and aging issues that further impact participation, and emotional and physical health and quality of life. Yet, the focus of rehabilitation continues to be on remediating impairments (motor, sensory, cognitive) and/or basic self care performance (ability to perform by oneself in a societally appropriate way), rather than also on “living life well with disability”; that is, being able to confidently manage environmental barriers and life issues and still be able to participate in activities of choice and society WITH long term disabilities, not in spite of or if completely overcome.
Dr. Hammel’s presentation will focus on two participatory action research studies to promote participation opportunities and decreaselevels of disparities: 1) research to create and validate new consumer-directed, computer-adapted testing (CAT) measures of participation and environment barriers and supports to it within the Rehabilitation Research and Training Center (RRTC) on Improving Measurement of Medical Rehabilitation Outcomes; and 2) research to design and test a participation-focused intervention program, the Home, Community & Work Participation intervention, within a randomized clinical trial in Chicago and St. Louis with 140 people with mild and moderate strokes within the RRTC on Enhancing the Functional and Employment Outcomes of Individuals Who Experience a Stroke. This research is funded through the National Institute of Disability & Rehabilitation Research (NIDRR). Together, the projects provide implications and key strategies for evaluating participation and documenting outcomes, and for provision of innovative interventions to then address identified disparities and improve access to home, community and work participation opportunities. Both projects have also utilized participatory research strategies to actively involve the disability community in all aspects of research and to better translate findings back to the community to address these important social justice issues.
Caroline Thompson PhD Fellows Presentations
Caroline Thompson PhD Fellows Julie Hunley, and Wade Gunn presented their research findings.
Preceptor of the Year Award
The Preceptor of the Year Award was presented to Tamra Trenary of the Mayo Clinic in Rochester, Minnesota.
MSOT Students Research Poster Presentations
Masters of Science in Occupational Therapy (MSOT) students Ashley Arbuckle, Laura Hewitt, Megan Janssen, Libby Reindl, Jocelyn Wack and Lindsay Wuest unveiled their research posters at the annual poster presentation event.